"Marie", has a new primary care "Doctor" now

Today's update is still in severe pain so Marie decided to call Shands and see if they would give her an appt without the referral and sure enough no. But they said if she went to urgent care they could. So off we go to Urgent care and with Marie hurting like hell to see if we could finally get an referral for Oncologist, which was a one day referral for Oncologist that has been going on for 6 days now. He started out talking to Marie and daughter; saying we can't help, and don't do pain medicine either; then I told him what was going on and that we been trying to get this referral for 6 days and that she's been in pain for six months now, and needs some help. Told him who her primary doctors were who let this referral sit for six days and it's a one day referral; he said that's not right, "what's their number" ? While I was looking for it he said that's ok I got it on his phone. He said hold on while I call them, be right back. Five minutes later he came back and said; come here let me talk to you; while Marie and daughter waited in the waiting room. He said I reached them, and he told them there is no reason for this lady to be going through this, "y'all" need to do your job; there's no since in this, and said they told him the referral will go out today. Sure enough the referral is in the Oncologist office now; got a text, telling me, after getting home.

He said we don't do pain medicine here and there's a sign on the door; reason is you won't believe all the people we would be turning away.I said we can go over across street to ER where she had MRI, he said that's right and a good idea. I thanked him and shook his hand; nice man. We went to ER and got to a room and another Dr came in and I explained everything and how Marie needs a mild dose of morphine for pain to help and she didn't do well with oxycodone; seems to have side effects bad off it. He seemed to be going to help her, said he will be back and give her something for pain; yet stayed away for about an hour, came back and said is that helping? I said, what's helping, they gave her nothing, he said really, oh I thought they did, I said no. He said well I need to ask you Marie, we can keep you and go ahead and do test of the brain, lungs, biopsies and see where it's coming from, and biopsies to see what kind it is and when we find out we will send you to Shands from there. Marie said you were talking about cat scans, he said yes. I was thinking; not too sure of it, no control of what's being done, that could maybe cause her more pain, I told him I think she will go to the Oncologist first, and he said whatever you think. He again said I'll be right back and we will give her something for pain; I asked him will it be much longer? He said no I'll be right back soon. So an hour or so later still no shot, we left. After getting home a few hours later had a call from the pharmacy saying she has a prescription called in for hydrocodone from them, which we didn't go get. Wondering how she would do on that one.


Then her primary Dr called, and apologised for not signing a referral, said she was sick for three days, and it was only a clique for her to sign off. Said she is not sure why they didn't send her an email.I was still mad, and Marie was nice saying it's ok, after suffering six to seven days.

Oh yeah, we did get referral to Oncologist, in case I didn't say so.
 
Tony Page said:
Jake,

Thinking and praying for you and Marie. Let the tears flow, crying is good way to get some relief. When I first read the post about Marie's illness, honestly I cried as I was replying. I couldn't stop it, so I started praying.

Keep positive thoughts and love your heart ❤️

Tony
Click to expand...


Thanks Tony, tears do come; and I try getting busy, so not to do it; it's hard. Went out on my tractor for awhile, while daughters were here helping Marie.
 
Connie Bennett said:
@Jake Smith please know my thoughts and prayers are with you and Marie🙏🙏🙏🙏

If she can handle the morphine, that is what my husband had when the pain got to be unbearable. He waited a very, very long time before he finally said he would take the morphine IV drips. They did help him.
Click to expand...


Thank you Connie, working on it, to maybe find something which will help but not mess with her mind.
 
Jake, I am trying to follow your post.
To confirm what others posted - urgent care facilities generally do not handle pain medications.
What happened to the hydrocodone prescription?
Please when something does not happen in a timely fashion follow up asap.
Has her cat scan been scheduled? Has Oncology been scheduled?
I really feel with you.
 
Marie Miller said:
Jake, I am trying to follow your post.
To confirm what others posted - urgent care facilities generally do not handle pain medications.
What happened to the hydrocodone prescription?
Please when something does not happen in a timely fashion follow up asap.
Has her cat scan been scheduled? Has Oncology been scheduled?
I really feel with you.
Click to expand...

We need to maybe just have one thread here about thi cancer.
Yes I've had 2 cat scans and one MRI on my lower spine. cancer has eat5en away at lower tailbone.
 
Marie Mallory said:
We need to maybe just have one thread here about thi cancer.
Yes I've had 2 cat scans and one MRI on my lower spine. cancer has eat5en away at lower tailbone.
Click to expand...

It's good to see you posting, Marie. We are all concerned about you and Jake, but don't feel you have to answer every question thrown at you. We are like an extended family here so we're all anxious for news.
 
@Marie Mallory @Jake Smith

Marie mentioned Ivermectin. I've read a couple of paths some folks take for COVID and for general prophylactic use. Keep in mind that I am a stranger on the internet and have no idea if ivermectin would be of benefit, so the following is just for chit-chat purposes and to give you ideas. If you get serious about this maybe you could try a cancer forum and see if any folks there are taking this path, what their experiences have been and what they are doing, then do a little research to verify. So the following is not a recommendation...just stuff I've read.

-Folks who do the "horse med" thing recommend the injectable liquid because it's cheaper than the paste and it has a longer shelf life. People mix it with something like OJ and drink it (THEY DO NOT INJECT IT!) Tractor Supply carries it, although I now see the injectable requires Rx (vet) approval. That was not the case last time I looked. Dunno how a Florida Tractor Supply might handle this. (Some people got horse connections.) This is the most economical option people have found for their needs. One can get 10ml non-needle syringes to extract/measure the dosage at Vitality Medical here for 24¢ each. The paste is a 2nd choice, and requires a scale to weigh out doses (one that weights grams to the right of the decimal point.) I got this one at Amazon for $17. It's dead-ass accurate 2 places to the right of the decimal point.

For human pills, Ivermectin.com is a trusted source. For a limited time, they are running a 20% off sale for everything on their site. Use Code IVM20 at checkout. They are not the cheapest online source but they are trusted both for the quality of the drug as well as not being a financial scam. An average COVID-sized dose (±12mg, depending on patient's weight) would be about $2 at the current sale price. 12mg from Amazon is $25 with a script required. Injectable horse ivermectin is about 40¢ per 12mg.

4 states have legalized ivermectin for sale OTC, with legislation pending in 9 others, but none of them are near Florida. From what I've seen, buying OTC is roughly double the price of Ivermectin.com and not widely available even though it's now legal to sell.

For other general purposes, Vitality Medical has all sort of medical supply stuff, and they have good prices and service.

As I said, I am not a doctor. But Marie mentioned it, so I thought I'd pass on what I've read to get you started.

edit to add: I just read your comments on another thread. Apparently you all are already on top of having ivermectin around.
 
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@Marie Mallory -- please don't think you can treat cancer with any OTC medication. Get that oncologist appointment ASAP.

@John Brunner -- in my experience, reputable cancer forums discourage or do not allow discussion of "alternative" treatment. There are no studies to show how those might interfere with standards of care. I was advised to not take any supplements while in treatment because they had no way of knowing about interactions.

You all may remember that Babs Hunt decided to refuse chemo and try some alternative treatments for her cancer. Babs was diagnosed at Stage 2 hormone positive, which usually has a very good treatment response. I have wondered if Babs would still be here if she had accepted the standard of care for her cancer.
 
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Marie Mallory said:
@Yvonne Smith
I've lost most muscle, so can you give me the recipy for the high protein whey you use.
They said muscle is very important to keep moving.
Click to expand...
We use the Six Star brand because it is fairly cheap, but it is not necessarily the best brand. Since cancer cells live on sugar from your bloodstream, you would still want a whey protein powder that is low on sugar, but high on protein. We buy the powder and mix it ourself, and I just use regular milk to mix it with.
You can get the premixed, but be sure to check the ingredients list to see if it is low carb and high protein and not just a lot of seeds oils mixed in. When you get the powder and blend it at home, you know there is no seed oils in it.
Both Amazon and Walmart have a good selection, just look for around 25-30 grams of protein and under 10 grams of carbs, and if it has vitamins added, that is good, too.

Once you have it blended, you can pour the mixture into the ninja containers and freeze it overnight and have it as ice cream the next day, easy-peasy ! So you can make some to drink as a milkshake and freeze some for ice cream, and you can add fruit or berries to the whey for diffferent flavors, and also we add the plain cocoa powder for when we want chocolate. If you add peanut butter or PB powder, then you would have Reese’s PB cup ice cream, or milkshake, and still not adding any sugar.
 
Yvonne Smith said:
We use the Six Star brand because it is fairly cheap, but it is not necessarily the best brand. Since cancer cells live on sugar from your bloodstream, you would still want a whey protein powder that is low on sugar, but high on protein. We buy the powder and mix it ourself, and I just use regular milk to mix it with.
You can get the premixed, but be sure to check the ingredients list to see if it is low carb and high protein and not just a lot of seeds oils mixed in. When you get the powder and blend it at home, you know there is no seed oils in it.
Both Amazon and Walmart have a good selection, just look for around 25-30 grams of protein and under 10 grams of carbs, and if it has vitamins added, that is good, too.
Click to expand...
Thank you.
 
Beth Gallagher said:
@Marie Mallory -- please don't think you can treat cancer with any OTC medication. Get that oncologist appointment ASAP.

@John Brunner -- in my experience, reputable cancer forums discourage or do not allow discussion of "alternative" treatment. There are no studies to show how those might interfere with standards of care. I was advised to not take any supplements while in treatment because they had no way of knowing about interactions.

You all may remember that Babs Hunt decided to refuse chemo and try some alternative treatments for her cancer. Babs was diagnosed at Stage 2 hormone positive, which usually has a very good treatment response. I have wondered if Babs would still be here if she had accepted the standard of care for her cancer.
Click to expand...
I think that it is important to do anything you can to try and stop the cancer. It seems like no matter what cancer treatment people use, some people survive and some do not.
Even Beth has pointed out several times that people she was in cancer treatment with, some are still alive and some aren’t, and she probably went to one of the best cancer treatment centers in the whole world.
People who have used alternative treatments have the same stories, they worked for some people , and not for others.

My thought (and this is just my personal opinion ) is that we should try anything that might help, providing that there is no danger to ourself by doing it.
There have been a lot of books and articles written about natural cancer treatments, and for the most part, I think that I would personally try most of them, along with whatever treatment my doctor prescribed.
When there is nothing to lose by trying, by all means , try…….paraphrasing W.Clement Stone.

Adele Davis wrote about large doses of vitamin C killing cancer cells, but she said you had to start with regular amounts and build up so that you didn’t harm yourself by taking a large dose and killing off too many cells at once, because your body can’t handle that.

Joanne Wortman wrote about the use of grapes to kill cancer cells, another safe thing to try.
Basically, she said that cancer cells live on sugar, and grapes have some element in them that will kill cancer cells; so she fasted overnight, and ate the grapes first thing in the morning, when the cancer cells were hungry and searching for a sugar feed.
It was like feeding poison to the cancer cells, because they ate the sugar from the grapes, and whatever it is in the grapes (I don’t remember anymore) killed the cancer cells.

Taking an anti-parasitic cleanse is not harmful either, and even if it doesn’t stop cancer, it would at least get rid of parasites that are making the body weaker. Amazon has all kinds of these.

I think I have read other things, but basically eating foods , like cruciferous foods which are said to be anti-cancer, and doing other things that are healthy and not harmful, would be a good thing to do.
Not instead of treatment, but along with it; to try and “stack the deck” in your favor.
 
Having had cancer twice now, but with no medical expertise in the subject beyond what I may have read or seen on YouTube, it makes sense to me that the things we put into our body very likely have an effect - negative or positive - on our chances of getting or surviving cancer. IMO, it is also true that the medical establishment tends to focus on one or two high-profile therapies or treatments, and dismissing all others, particularly those that involve diet or natural remedies.

However, it doesn't necessarily follow that any natural remedies or alternative treatments you might read of, or come across on YouTube, are going to be effective. Well-meaning or otherwise, people can make anything up and, absent the necessary funding for an accurate assessment, we can't know, given that the available evidence is generally anecdotal or, in some cases, invented.

If I had decided to eat apricot pits when I got cancer, and the cancer went away, as some cancers do, I will be absolutely convinced that apricot pits were the cure for cancer, but my cancer might have gone away with or without the apricot pits. Or, if they worked for me, they wouldn't necessarily work for you.

IMO, the time for trying various diets, foods, vitamins, supplements is before you have been diagnosed with cancer. Even then, you need to be careful because something isn't automatically safe just because it's natural. Foxglove, Hemlock, and Deadly Nightshade, are all natural, but I wouldn't eat them.

I think the time to worry about cancer is when we're the least likely to worry about cancer, which is when we're still healthy. Eat real foods, avoid GMO foods, heavily processed foods, and junk foods; exercise, and be careful about what you put on or in your body - which is not to say that I did any of that.

When diagnosed with cancer, I opted for the standard cancer treatments offered in hospitals and cancer centers. There was a bit of picking and choosing which of these I was going to try, which almost seemed unfair because the stakes were high and I knew as much about it that I might have just flipped a coin. I bought one of the largest books I have ever seen, on prostate cancer, and couldn't read it, because reading it would have encouraged me to run away into the woods and try to forget that I had cancer. In the end, I chose radiation treatment alone because I didn't want a urinary catheter, and ended up with a urinary catheter anyhow. But, it's been nearly two decades since, and my PSA numbers are still good. My second cancer was another kind of cancer, easier than the other.

I am very sorry for what you are going through, Marie, and pray that the results will be good, and that they will come soon. I have experienced cancer and cancer treatments, but there are far worse cancers that require far scarier treatments than I have endured. While I generally opt out of pain medication, the pain of cancer treatments, and cancer itself, can be way worse than I have ever felt, and I can't say that I would opt out of pain medications in the face of something like that. I hate doctors, but they know a lot more about this stuff than I do.
 
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John Brunner said:
@Marie Mallory @Jake Smith

Marie mentioned Ivermectin. I've read a couple of paths some folks take for COVID and for general prophylactic use. Keep in mind that I am a stranger on the internet and have no idea if ivermectin would be of benefit, so the following is just for chit-chat purposes and to give you ideas. If you get serious about this maybe you could try a cancer forum and see if any folks there are taking this path, what their experiences have been and what they are doing, then do a little research to verify. So the following is not a recommendation...just stuff I've read.

-Folks who do the "horse med" thing recommend the injectable liquid because it's cheaper than the paste and it has a longer shelf life. People mix it with something like OJ and drink it (THEY DO NOT INJECT IT!) Tractor Supply carries it, although I now see the injectable requires Rx (vet) approval. That was not the case last time I looked. Dunno how a Florida Tractor Supply might handle this. (Some people got horse connections.) This is the most economical option people have found for their needs. One can get 10ml non-needle syringes to extract/measure the dosage at Vitality Medical here for 24¢ each. The paste is a 2nd choice, and requires a scale to weigh out doses (one that weights grams to the right of the decimal point.) I got this one at Amazon for $17. It's dead-ass accurate 2 places to the right of the decimal point.

For human pills, Ivermectin.com is a trusted source. For a limited time, they are running a 20% off sale for everything on their site. Use Code IVM20 at checkout. They are not the cheapest online source but they are trusted both for the quality of the drug as well as not being a financial scam. An average COVID-sized dose (±12mg, depending on patient's weight) would be about $2 at the current sale price. 12mg from Amazon is $25 with a script required. Injectable horse ivermectin is about 40¢ per 12mg.

4 states have legalized ivermectin for sale OTC, with legislation pending in 9 others, but none of them are near Florida. From what I've seen, buying OTC is roughly double the price of Ivermectin.com and not widely available even though it's now legal to sell.

For other general purposes, Vitality Medical has all sort of medical supply stuff, and they have good prices and service.

As I said, I am not a doctor. But Marie mentioned it, so I thought I'd pass on what I've read to get you started.

edit to add: I just read your comments on another thread. Apparently you all are already on top of having ivermectin around.
Click to expand...


Thanks John, great advice.
 
Marie Miller said:
Jake, I am trying to follow your post.
To confirm what others posted - urgent care facilities generally do not handle pain medications.
What happened to the hydrocodone prescription?
Please when something does not happen in a timely fashion follow up asap.
Has her cat scan been scheduled? Has Oncology been scheduled?
I really feel with you.
Click to expand...


Thanks, "Marie", and they did cat scans and MRI's, told us we could leave and gave us our release papers; only to come and catch us as I was taking her out ER, she said you can't leave it's cancer masses S1 and T12, we have to do MRI right now. WE had been thinking about the pulled muscles and would heal after going through severe pain for six months. It's like being kicked in the face by a horse, went into shock; I believe. Marie is such a trooper she said ok lets do it. :(
 
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