Keeping Doctors on Track

Ken Anderson

Greeter
Staff member
Someone said in another thread got me thinking about my doctor's visits, and how I try to orchestrate things so that the doctor actually focuses on the problem that I'm having, rather than something else.

For example, I regularly check my blood pressure, pulse, oxygen saturation, and so on, and the Apple Watch monitors some of these and some other things, as well, so I know that I don't generally have high blood pressure, and I know that a pulse rate of 40 is not something that I need to do worry about. The founder of the Heart Hospital in McAllen, Texas, was our medical director when I had an ambulance company, and I spoke to him about my low pulse rates.

However, I might go to a doctor because my left ankle hurts. That's what hurts first when I am on the elliptical machine: it's my left ankle that keeps me from running, and I think it might be behind a few falls I have had. However, when I see my doctor about my ankle, if my blood pressure is on the high side of normal when they check it before the doctor comes in, the whole session is likely to be about whether I should take blood pressure medication. I think it's easier for them to focus on that kind of stuff than on real problems.

Whenever I get a new doctor - and the clinic I do go to changes doctors often - my first couple of appointments will focus on my low pulse rate, as if it's something I should fix, when I view being able to regain my normal low pulse rate as a positive sign, since it came about only after I began exercising regularly.

Likewise, I don't buy into the idea that a cholesterol level on the high side of what they consider normal is something I need to worry about, and, to the extent it is, it is something to be controlled by diet, not statin drugs.

So, for the week prior to an annual doctor's appointment, I "study" for my test by being very careful about what I eat, I get plenty of sleep the night before, and I try to go into meditation mode while they're taking my blood pressure so that the whole thing isn't derailed over things that I don't consider to be important. It isn't that I think I know more about this stuff than the doctors do, but that I recognize that they're not spending more than fifteen minutes with me, generally, and one blood pressure reading, often with the cuff misplaced, is not representative of my blood pressure, and I don't want to suffer the ill effects of a statin drug just because I ate some of the wrong stuff in the days before the blood test.

Do you find you need to orchestrate things to keep your doctor on track?
 
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That is exactly what i try to do as well, and it does seem like doctors only want to focus on blood pressure and cholesterol. Not only that, they have several times over the years lowered what they consider to be an okay reading for both of these measurements.
In 1950, a BP of 160 was fine for an older adult, and 300 was considered normal for cholesterol. Since our body actually makes most of the cholesterol we need for our brain, our level is going to be affected by what we make as much as what we eat that has cholesterol in it.

When I was doing the Apple Watch study, and had to take BP twice a day, they had me sit quietly for 5 minutes, feet flat on the floor and sitting up straight in the chair, , then wait a minute and take a second reading.
At the doctor’s office, we might have been walking a ways from the parking lot, climbing stairs, or whatever, and they just put the cuff on (usually WAY too tight so you tense up anyway), and then take your reading; so it is definitely not going to be as accurate as the method I was using in the study.
Even then, my readings varied almost every time i took the measurements.

Pretty much, I just depend on the doctor visits to see what my lab results are, and when I did have some other thing that I wanted checked out, they didn’t really do much anyway.
 
My blood pressure and blood work is perfect. Then came the unperfect and two options - gently ease into it or go for hip replacement and thumb joints next week. I do not have time for that! We went over SO insisting on juice for breakfast and lunch. He has a date with her Monday. Petite Oklahoma rancher daughter, blonde, blue eyes, tough as nails. She squeezed spider poison out of my upper arm.
Her daughter’s birthday is tomorrow, her husband writes a letter to the children on their birthday, her father passed around Thanksgiving. We had a good 15 minute cry about our fathers.
No reason to keep her on track. We do family practice as in “you got the crud text if he has it”. SO had diagnostics and she was on the phone in 15 minutes.
I do take hot sauce, cowboy candy and cookies to her staff and to her:)
 
My blood pressure and blood work is perfect. Then came the unperfect and two options - gently ease into it or go for hip replacement and thumb joints next week. I do not have time for that! We went over SO insisting on juice for breakfast and lunch. He has a date with her Monday. Petite Oklahoma rancher daughter, blonde, blue eyes, tough as nails. She squeezed spider poison out of my upper arm.
Her daughter’s birthday is tomorrow, her husband writes a letter to the children on their birthday, her father passed around Thanksgiving. We had a good 15 minute cry about our fathers.
No reason to keep her on track. We do family practice as in “you got the crud text if he has it”. SO had diagnostics and she was on the phone in 15 minutes.
I do take hot sauce, cowboy candy and cookies to her staff and to her:)

If I understood you correctly; hip and thumb joint replacement at the same time? Wow! That's alot to bare. :(
 
If I understood you correctly; hip and thumb joint replacement at the same time? Wow! That's alot to bare. :(
If it needs fixing it needs fixing. Stove and sink are not set for wheelchair users but the rest of house, patio and garden is. Start working with physical therapy on prep work next week. Then set a target time frame. April, October, March are out. Surgeon, CPC, PT know each other well as professionals and patients. SO is very hands on as far as kitchen, garden, cat and driving a patient out of bed is concerned.
This will require a bribe in form of earrings:)
 
I don't do anything special before visiting the doctor, besides taking a shower, but only if I fail the self arm pit smell exam or a sniff test reveals anything that smells fishy. :sneaky: No doc has ever forced me to take any prescription or do anything I don't like. If I don't like what they say, I argue with them or just ignore it. :cautious:

When my old doc retired that had talked with my Neuro-otologist and read the medical text on inner ear and viral pathology, that I loaned her, I went through two new docs before I found one that would stay on the same program as my old doc. My current PCP doc goes by what former specialist have on my records and sends me to specialist, if it is above her pay grade. She didn't care to borrow my text or listen to my lecture, but had no problem keeping my meds the same that had been working for years. 😇

I still can't believe one doc wanted to cut my anti viral med to once a day. She couldn't comprehend that each capsule has a 12 hour half life meaning it is half strength in 12 hours. Her theory was I shouldn't take another one until 24 hours when it had no life. She couldn't comprehend that once this drug passes a half life, it may allow virus to replicate. It works like a firewall. Even one pharmacist wanted to argue with me. Stupid little 💩!

I remember one doc I argued with saying, "So you're a doctor now." 🥼 I replied, "Well, someone had to step up and take my health seriously." 💡😎 A good friend suggested I start wearing scrubs and one of those little surgeon caps when I go to doctor appointments. I have shopping to do, it seems. Anyone have a good scrubs ensemble and stethoscope recommendation? :ROFLMAO:
 
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I remember one doc I argued with saying, "So you're a doctor now." 🥼 I replied, "Well, someone had to step up and take my health seriously." 💡😎 A good friend suggested I start wearing scrubs and one of those little surgeon caps when I go to doctor appointments. I have shopping to do, it seems. Anyone have a good scrubs ensemble and stethoscope recommendation? :ROFLMAO:

I told my oncologist that I am a famous internet physician and he got a chuckle out of it. He also told me to stop googling because I was scaring myself half to death.
 
I told my oncologist that I am a famous internet physician and he got a chuckle out of it. He also told me to stop googling because I was scaring myself half to death.
What is worse than an internet search, is reading your My Chart. It is easy to read things into it, that may or may not be an issue. The Radiologist words his "impression" to cover every possibility, for liability reasons. Just like my last My Chart, cancer scan impression, said, "No significant cancer noted."

My Gyn/Uro/Oncolo says the Radio Doc won't say for sure there isn't because at my age and previous cancer history, their test can't prove there is, except significant, but also can't rule out, very slow growing, low level cancer. Other test indicate there is a 90% chance I do have a low level cancer, so my celebration of being cancer free, was short lived. Back to 6 month exams and blood test. No scans again until spikes on my graph are noted.

Once again, my life is a continuing graph on the Oncologist's computer. I am thankful we have this technology, but I had rather be an observer than a participant.
 
Once again, my life is a continuing graph on the Oncologist's computer. I am thankful we have this technology, but I had rather be an observer than a participant.

Yes, access to information is a blessing and a curse.

I have been having a couple of issues that I don't plan to discuss with my PCP or my oncologist when I see him in May. I know that I will not have any more curative intent cancer treatment because it is too harsh and left me with too many 'parting gifts' that make my life miserable.

If cancer is discovered again, I will ask for palliative care and ride it out. So many of the women who were in treatment with me have died that I wonder every day why I am still here. Most of them were significantly younger than me, and had their whole lives ahead of them.
 
Yes, access to information is a blessing and a curse.

I have been having a couple of issues that I don't plan to discuss with my PCP or my oncologist when I see him in May. I know that I will not have any more curative intent cancer treatment because it is too harsh and left me with too many 'parting gifts' that make my life miserable.

If cancer is discovered again, I will ask for palliative care and ride it out. So many of the women who were in treatment with me have died that I wonder every day why I am still here. Most of them were significantly younger than me, and had their whole lives ahead of them.
Yeah, I know! All three of the ladies I visited with at the oncologist office, three years ago are dead. One my age and two a few years younger. It sucks!
 
Yes, access to information is a blessing and a curse.

I have been having a couple of issues that I don't plan to discuss with my PCP or my oncologist when I see him in May. I know that I will not have any more curative intent cancer treatment because it is too harsh and left me with too many 'parting gifts' that make my life miserable.

If cancer is discovered again, I will ask for palliative care and ride it out. So many of the women who were in treatment with me have died that I wonder every day why I am still here. Most of them were significantly younger than me, and had their whole lives ahead of them.
Perhaps someone wanted you to continue.
 
Yes, access to information is a blessing and a curse.

I have been having a couple of issues that I don't plan to discuss with my PCP or my oncologist when I see him in May. I know that I will not have any more curative intent cancer treatment because it is too harsh and left me with too many 'parting gifts' that make my life miserable.

If cancer is discovered again, I will ask for palliative care and ride it out. So many of the women who were in treatment with me have died that I wonder every day why I am still here. Most of them were significantly younger than me, and had their whole lives ahead of them.
Age has nothing to do with cancer. Have you visited a palliative unit?
 
Age has nothing to do with cancer. Have you visited a palliative unit?
Yes, I am aware that age has very little to do with cancer. My point was that the younger women still had so much living to do and children to raise, but that was taken from them. I'm sure you have heard of "survivor's guilt."

And no, I have not visited a palliative unit because I have not needed to. I am in remission.
 
Yes, I am aware that age has very little to do with cancer. My point was that the younger women still had so much living to do and children to raise, but that was taken from them. I'm sure you have heard of "survivor's guilt."

And no, I have not visited a palliative unit because I have not needed to. I am in remission.
Having worked for Hospice, there are different types of palliative care depending on your needs and preferences.
 
Yes, palliative care and hospice are two entirely different things.
My point was that you can receive palliative care at home. You don't need to be in a facility. The same is true with hospice care. The care is similar but the ends are not the same. Supposedly you have a 6-month life expectancy in hospice, although that is not enforced. No such requirement exists for palliative care, and the insurance requirements are different. Many, although not all, of the techniques are similar.
 
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