Hospice Just Delivered Everything

Krystal Shay said:
There is some very good medication for panic attacks, Marie. They can help calm you. You should ask about getting some. Not only will they help keep you calm, but it will help you get some much needed rest. A lot of people have to take something when they are going through a medical crises because it is a lot to absorb. You can ask your hospice team or doctors about it. It will also help keep you totally chilled and calm, if you decide to get a PET scan or any other tests or treatments. Jake may need something too because he is feeling very anxious and depressed about everything also.

We care about you and Jake.
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Thank you Kate and your right we may both need some help with the mental part.
 
@Marie Mallory please know you and Jake are still in my prayers —- there seems to be so many to pray for these days, including myself, that I don’t always remember everyone.


I am in middle Tennessee and I wanted to provide this quote and the link it came from regarding hospice care. Hospice care is provided in Tennessee when they deem the patient needs it, not just because they feel that it’s close to the end of life for the patient. It clearly states in this webpage That often times Care can go well beyond the six months. Meaning you do have more than six months to look forward to if you can mentally keep fighting.

My husband was gone two years on April 22. He did not have hospice care because he didn’t want it. I took care of him at home up until his last 72 hours, plus I took care of this farm. For some reason, he did not want strangers coming to our house, so I honored his wishes. His mental situation was extremely complex. While I feel that yours is too, I also feel that mentally you are a much much stronger individual than he was, a lot of that being attributed to you being a female IMHO.😇😇😇😇

The best advice I ever got from anybody in this life, was when I lost my 19-year-old son in a car accident in 1993. And that was when things get rough breathe deep and take life one heartbeat at a time. I still have to do that more often than not. It was good advice so I pass it along to you in good faith and pray for peace and comfort for you.

I will not say anymore on your situation because there isn’t anything else for me to say. Just know that even though I will be silent, you will be in my heartfelt prayers every night.🙏🙏

FROM THE WEBSITE:

“We can help sooner than you think. Many people simply don’t realize that hospice care is *not* just for the final days of life. Patients are eligible as soon as their life expectancy is six months or less. That means hospice care is available for several months and often lasts even longer. In some cases, the extra care enables patients to live longer than expected while experiencing a better quality of life.

Family members may fear that choosing hospice means “giving up” on a loved one. But the truth is, most of the families who come to us say they wish they had come sooner. That’s because the support they receive from our care teams takes a huge weight off their shoulders, letting them concentrate on just being together again. Our teams are experts at patient care, providing comfort and relief from symptoms. They also support the entire family.

We provide education on caregiving, 24/7 face-to-face support when questions arise, counseling, spiritual support and more. Every team includes a doctor, a nurse, an aide, a social worker and a chaplain. Our two residences provide round-the-clock care when needed, including times of respite for at-home caregivers. Every loved one also has access to our Grief Center and counselors who specialize in bereavement. We even offer programs for children and for different types of losses.

You won’t find this level of support anywhere else. Alive is the only nonprofit hospice in Middle Tennessee, and the support we receive from the community allows us to offer services that go above and beyond Medicare requirements for hospice.

Hospice care is covered by most insurance. Let us help you make the most of your precious time together.”

When Is it Time for Hospice?

Learn when it’s time for hospice care with Alive Hospice in Nashville & Middle TN. Find guidance and compassionate support today.
alivehospice.org alivehospice.org
 
I was wondering about the "six-month" thing because, unless they plan on killing someone after six months, you can't know how long you have. Most doctors won't tell you how many weeks, months, or years you have left, because that is generally taken as a promise by family members, and as an expiration date by patients, who may sell everything they have, knowing they have only six months to live, only to still be around after that time.
 
Ken Anderson said:
I was wondering about the "six-month" thing because, unless they plan on killing someone after six months, you can't know how long you have. Most doctors won't tell you how many weeks, months, or years you have left, because that is generally taken as a promise by family members, and as an expiration date by patients, who may sell everything they have, knowing they have only six months to live, only to still be around after that time.
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The "six month thing" is simply a qualifier for eligibility, another Medicare/insurance rule. When doctors conclude that all medical options are exhausted and in their best estimate the patient will expire within 6 months, the patient becomes eligible for hospice.

Prior to that, the patient is likely in active curative treatment or palliative care. There's no rule that a person must die before the 6 months ends, or that hospice care ends in 6 months. In fact a large number of people remain in hospice for many more months or years beyond the 6-month qualifier.
 
Ken Anderson said:
I was wondering about the "six-month" thing because, unless they plan on killing someone after six months, you can't know how long you have. Most doctors won't tell you how many weeks, months, or years you have left, because that is generally taken as a promise by family members, and as an expiration date by patients, who may sell everything they have, knowing they have only six months to live, only to still be around after that time.
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6 months is just the guideline. I have seen some patients go 18 months in hospice, and I even saw one "graduate", as she went into spontaneous remission and was released from hospice. I don't know how the paper work was handled though.
 
Why do people, who are the kindest on earth have to suffer like this , it’s simply not fair :cry:

@Jake Smith and @Marie Mallory are kind and loving people who’ve taken in loved and cared to unwanted pets over the years and given them the life many humans would give their last $1 for ….such a life
Are your dogs by your and Jake’s side during this extremely stressful time in your life Marie …they know if you are in pain / mentally worn down and would be there to comfort you both with loving paws 🐾
 
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