Advanced Macular Degeneration

Discussion in 'Health & Wellness' started by Babs Hunt, Nov 16, 2016.

  1. Debby McLoud

    Debby McLoud New Member
    Registered

    Joined:
    May 28, 2017
    Messages:
    9
    Likes Received:
    8
    Well good for you for making the necessary changes! Excellent and wonderful that you stuck with your dietary adjustments. Babs made me think of a guy we knew who had a massive heart attack, and while at first he did do what his doctor ordered, and lost a ton of weight and was feeling good and getting healthier, about a year in, he just gave up. Knowing how bad it would be for him, he still quit exercising, started eating bad again and his health went back down hill. So Babs, your husband isn't alone with not doing what is good for him. Lots of folks know but can't muster the will power to start or keep on with a change.

    Yvonne, one thing I did think of regarding your diet, just be careful of the coconut oil. While it's reported to have some benefits, it's also a saturated fat just like the animal fats. Since I found that out, I've cut way back on my use of coconut oil which I used to use for everything. Now I'll use it for popcorn because I love the flavour with a touch of salt but I don't sautee foods with it anymore and have switched to organic Canola oil because it is a mono-unsaturated oil like olive oil or nuts and so is better for the heart. Here's a link to a great video by Dr. Greger who does an excellent job of explaining why the oils in our diet are so important to heart health. If you go to 19 minutes in, that's where he gets right into the oil explanation and he does a really good job of making it understandable.

    Anyway, again, congrats on your improved health. Isn't it wonderful when you figure out stuff and feel the benefits! I'm just curious if your doctor spent any time on your diet?
     
    #26
    Last edited: Jun 5, 2017
  2. Babs Hunt

    Babs Hunt Veteran Member
    Registered

    Joined:
    Feb 12, 2016
    Messages:
    5,415
    Likes Received:
    6,887
    I will be taking my Honey to his first appointment with his new Retina Specialist on Thursday thanks to our Optometrist. I had taken my husband in to be checked for new prescription glasses and our Optometrist was so startled by the drastic change in his vision in less than a year that she asked what his Retina Specialist was doing to help him. And we told her that he really wasn't doing anything and that we were in the process of switching to another Retina Specialist, Dr. Gauthreaux but we had not heard anything yet since our Primary Physician had referred my husband to him. Our Optometrist called Dr. Gauthreaux's Office, explained her concerns and got my husband an appointment right away. It helps that our Optometrist's mother and some other family members have macular degeneration too and she knows what we are going through and is willing to help in any way she can.
     
    #27
    Yvonne Smith and Chrissy Cross like this.
  3. Gloria Mitchell

    Gloria Mitchell Very Well-Known Member
    Registered

    Joined:
    Mar 18, 2017
    Messages:
    1,146
    Likes Received:
    1,523
    Always seems to be something does it not? At least now maybe get more information and help. Keep us posted !
     
    #28
    Babs Hunt likes this.
  4. Babs Hunt

    Babs Hunt Veteran Member
    Registered

    Joined:
    Feb 12, 2016
    Messages:
    5,415
    Likes Received:
    6,887
    I took my husband to see his new Retina Specialist today and we both are very pleased with him and we now feel like we have another member on our team instead of someone just trying to line his pockets with our copay and whatever our Medicare Advantage plan pays him.

    The new Retina Specialist couldn't really tell us there was anything he could do to change my husband's macular degeneration but he did explain things to us and tell us that there is alot of visual aides, etc. out there now to help retain as much of his vision as possible. We really liked his Assistant too, who talked to my husband about everything she was doing and why...just like the Retina Specialist did. We also spent about an hour and a half in his Office instead of the 3 hours we have spent in the other Specialist's office.

    All in all we made a very good decision in changing to a new Retina Specialist.
     
    #29
    Martin Alonzo likes this.
  5. Babs Hunt

    Babs Hunt Veteran Member
    Registered

    Joined:
    Feb 12, 2016
    Messages:
    5,415
    Likes Received:
    6,887
    One of the reasons I have not been posting alot lately is because I have busy taking my husband to Doctor appointments, to and from work, etc.

    He had an appointment with our Optometrist before we went to see the new Retina Specialist and his eyesight had deteriorated in less that a year from 20/30 in one eye and 20/40 in the other to 20/80 and 20/200. :(

    Sitting in the room with him and watching while he did the eye tests made me so sad...he could basically read only the biggest letter on the eye chart. I think even the Optometrist was surprised at how much his vision had gone down. We are blessed those that our Optometrist's mother has Macular Degeneration and I think some others in her family too...knowing so much about this disease because her Mom is going through it, makes our Optometrist really want to help my husband in every way she can. She wanted us to see the new Retina Specialist before filling his new prescription so we did. We then stopped by our Optometrist's Office to see what she thought was the best thing to do but the Receptionist told us the Retina Specialist had not faxed over his thoughts on my husband's case yet... and then we did not hear anything for over 3 weeks. One day my husband said that he thought the reason why the Optometrist didn't get back in touch with us was because she didn't really feel getting a new prescription would help my husband. When he told me that I was totally surprised and told him our Doctor would never just leave us hanging there...she would call and be honest with us even if it meant saying she didn't think a new prescription would help.

    I decided to send a email to our Optometrist and ask her why she hadn't gotten back in touch with us. Not even an hour later her Office Receptionist called and told us that our Doctor had never gotten our message from the one we talked to at her Office and that as soon as our Doctor finished up with the patient she was seeing she would call us. When she called a few minutes later the first thing she did was apologize and tell me that the lady we gave the message too was no longer working for her because evidently she wasn't passing on any messages to our eye Doctor. And she asked us if we could come in anytime soon....so we set up an appointment for a few days later. While she was on the phone though I asked her if she thought buying the new prescription would help my husband and she was honest and said she didn't know....but that this is why she wanted us to come in...so she could run more tests (at no cost to us) and see how much improvement she could bring to my husband's sight with a new prescription. Once she fitted him with the test lens that gave him the most improvement he could tell her whether he thought there was enough improvement to order the new prescription.

    The good news was she was able with her equipment to get his vision to 20/50 in his good eye and 20/100 in the other. The additional testing cost us nothing and my husband did feel it made a difference in his sight so we went ahead and ordered the new prescription and with our vision allowance for new glasses we only had to pay $33 out of our pocket for his new glasses. He got them on his Birthday (Sept. 19th) and they do make a difference to him. Our Optometrist will see him again in six months and will run additional tests that she said she will not charge us extra for since our vision allowance on our Health plan only covers basic vision tests. We feel God has blessed us with an eye Doctor that has compassion and wants to help my husband keep as much of his vision as possible because she is going through this with her own Mom and some family members and knows what my husband is going through.

    Now we just have one more big change to make and it is my husband who had made the decision to do this. Next Wednesday I will take him to the Driver's License place and he will surrender his Driver's License and I will become our one and only driver after that.
     
    #30
    Last edited: Sep 24, 2017
  6. Yvonne Smith

    Yvonne Smith Very Well-Known Member
    Registered

    Joined:
    Jan 21, 2015
    Messages:
    4,831
    Likes Received:
    6,962
    It sounds like you have found a good eye doctor who really cares about helping people, @Babs Hunt , and already your husband is seeing better than he has been able to, from the sound of it.
    That new glasses prescription has really made a lot of difference, it seems.
    Why does your husband have to surrender his driver’s license ? As long as he is not driving, that achieves the same effect as surrendering the license; but if there were an emergency where he HAD to drive, he still legally could do that. Is it for insurance purposes ?
     
    #31
  7. Babs Hunt

    Babs Hunt Veteran Member
    Registered

    Joined:
    Feb 12, 2016
    Messages:
    5,415
    Likes Received:
    6,887

    He is the emergency Yvonne. Since his central vision is basically gone in one eye and can at anytime go out in the other eye this means that he is often not able to see the car in front of him or on the side of him...cars the same color as the road pretty much fade into the road so he often cannot recognize it as a car. If the road does not have bright contrast stripes he cannot even stay on his side of the road, etc.

    In each State too you have to meet certain vision guidelines even with corrective lenses and my husband is at the point where he may meet that guideline one day in his new glasses and only in one eye, but the next day his vision may not meet that guideline. Macular Degeneration has no stability (in some people)...your vision can change from one day to the next and even from one time of day to another time of that same day. It is not safe for him or others at this point for him to be driving...he has made this decision for himself and because of what he knows his vision is doing. Even if we went to renew his DL and he passed with his good eye right now there would still be lots of restrictions....but those restrictions would not take into consideration whether he could be driving and lose his central vision and not see what is right in front of him, etc. It was a hard decision for him to make but he feels it is for the best and even his Optometrist talked to him about this and feels it is for the best too with his vision having deteriorated so much in less than a year.

    And it also does have to do with insurance because as long as he has a license he will have to be covered on our insurance even though he isn't driving....and this costs more too.

    If there is an emergency we are surrounded by family and friends, etc. we can get to help us.
     
    #32
    Last edited: Sep 24, 2017
    Yvonne Smith and Chrissy Cross like this.
  8. Gloria Mitchell

    Gloria Mitchell Very Well-Known Member
    Registered

    Joined:
    Mar 18, 2017
    Messages:
    1,146
    Likes Received:
    1,523
    @Babs Hunt :(:(, so sorry, giving up the DL is a big thing for anyone. My hubby, does not have good vision, never has. Not the eye problem your
    husband has ...but i am wondering if it will lead to this disease. He is also red green colorblind. He has done all the major driving for 26-27 years, but now, he does not to drive a long way unless he has to. The construction, the noise, the closeness of cars, and not being able to judge distance anymore,
    keeps us close to home. We use to joke before married about what would happen as my hearing loss progressed,and his eye sight woresened.
    His comment was- you lead,I will follow. Very glad your husband, has a loving and caring wife to help him through this.
     
    #33
    Yvonne Smith and Babs Hunt like this.
  9. Babs Hunt

    Babs Hunt Veteran Member
    Registered

    Joined:
    Feb 12, 2016
    Messages:
    5,415
    Likes Received:
    6,887
    Gloria, I don't know whether your husband will get macular degeneration or not. The good news is my husband will not lose all his vision, he will have side vision but will lose all his central vision. I put a video up showing what that would be like. An example is he might not beable to see my face anymore but he maybe able to see my hair. And there is supposed to be ways to train your side vision to take over some of what you lose. But as much as he may miss driving, he is smart enough to know it is the right thing to do.

    I am losing some hearing too and my husband and I tell each other that I will be his eyes and he will be my ears. :) We both feel blessed to have each other....he is just as loving and caring to me....as I am to him. :)
     
    #34
    Gloria Mitchell likes this.
  10. Krissttina Isobe

    Krissttina Isobe Very Well-Known Member
    Registered

    Joined:
    Aug 28, 2015
    Messages:
    1,401
    Likes Received:
    1,450
    I too was diagnosed with AMD dry and cataracts. My doctor is a specialist and she is watching it. Now it's been 2 yrs. I've been taking Billberry and Occuvite. My doctor is watching me closely, and she says my eyes aren't getting any worse and getting healed. Thank God! I pray a lot. I don't want to loose my eye sight ever. I want all my senses and mobility till I die. Maybe your husband can try e-cigs if he smokes, safer for him. Well I hope things turn out well for your husband and you. God be with both of you for a miracles.
    Saint Lucy is the Saint for eyes.
    https://prayers4reparation.wordpress.com/2012/08/30/novena-prayer-to-st-lucy-protector-of-the-eyes/
     
    #35
    Last edited: Sep 24, 2017
    Yvonne Smith likes this.
  11. Babs Hunt

    Babs Hunt Veteran Member
    Registered

    Joined:
    Feb 12, 2016
    Messages:
    5,415
    Likes Received:
    6,887
    @Krissttina Isobe Usually the dry form of AMD does progress slowly but each case is different and my husband's is definitely progressing faster than I think even the Retina Specialist thought it would.

    He does take PreservaVisison Arians 2 eye vitamins and extra lutein. He has cut down on his smoking but to be honest even the Retina Specialist told him at this point it won't really make a difference for his eyes as you can't undo the progression. And he has so many of the things that help bring AMD on such as blue eyes, lived in the Florida sunshine since he was 14 and probably did not wear sunglasses that were strong enough to really protect his eyes from the ultrviolent and blue rays, etc. AMD runs in his family also. And he does not eat alot of greens and never did.

    Although I wish we could go back in time and undo all he didn't know to do...it's to late for that. So we go forward and do the best we can with living a good life in spite of AMD.
     
    #36
  12. Krissttina Isobe

    Krissttina Isobe Very Well-Known Member
    Registered

    Joined:
    Aug 28, 2015
    Messages:
    1,401
    Likes Received:
    1,450
    That's so true if we knew then what we know now, it definitely would be different...we wouldn't have AMD and be wearing sun glasses even on cloudy days. Praying does help I believe, so don't give up okay? Take care and wish you and your husband the best and cures! Take care. You're welcome in advance.
     
    #37
  13. Babs Hunt

    Babs Hunt Veteran Member
    Registered

    Joined:
    Feb 12, 2016
    Messages:
    5,415
    Likes Received:
    6,887
    Oh we would never give up Krissttina...we will just live our lives to the best of our ability. There are things that help him use his side vision better and things that have people live and easier life in their homes, etc. with the loss of their central vision. We are already finding things that work for my husband like magnifying glasses with built in lighting which allows him to keep working part time at this point.
     
    #38
    Krissttina Isobe likes this.
  14. Krissttina Isobe

    Krissttina Isobe Very Well-Known Member
    Registered

    Joined:
    Aug 28, 2015
    Messages:
    1,401
    Likes Received:
    1,450
    :)That's wonderful. My Mom before she passed, used magnifying glasses and reminded me of Sherlock Holmes when I saw her using it. I too use it when the fonts are too small for my glasses. My doctor is watching my cataracts and according to my Aunt, she says it's just a day for each eye and it is really quick and nothing to be afraid of...I hope so. Using Ocuvite has helped me and my AMD is not getting any worse so I'm relieved. I drink Billberry too, which got pricey recently! Take care and wish both the best and miracles!
     
    #39
    Yvonne Smith likes this.
  15. Babs Hunt

    Babs Hunt Veteran Member
    Registered

    Joined:
    Feb 12, 2016
    Messages:
    5,415
    Likes Received:
    6,887
    @Krissttina Isobe My husband has made his decision not to try and quit smoking...which I believe is the #1 reason his AMD is advancing so fast. Our Doctors have talked to him about this too...but the Retina Specialist also told him at this point he didn't really think it would make a difference since he doesn't believe the damage already there can be undone...or stopped from progressing. This is one reason I wanted to switch his Retina Specialist to a new one. And we did. The new Specialist if more user friendly, but he still has no answers or anything new to try, etc. either. I wish my husband would just try going smoke free for six months to see if there is any difference at all...but he won't even think of it. I think because his Mom had the wet form ... he is just resigned to the fact that it will happen no matter what he does. No matter what I say, read to him, etc. it doesn't seem to make a bit of difference. He will take the eye vitamins and extra lutein, eat his green veggies that I cook for him, and wear his special sunglasses. But he is a grown man and I cannot make him give up smoking, even though I do think that would make a difference.
     
    #40
  16. Krissttina Isobe

    Krissttina Isobe Very Well-Known Member
    Registered

    Joined:
    Aug 28, 2015
    Messages:
    1,401
    Likes Received:
    1,450
    :confused:Sorry took so long to reply...Hmmm, how about suggesting to your husband about disposable e-cigs? I found a reasonable price site and the disposable e-cigs lasts about 2.5 or 3 days. NEwhere.com is the site where I buy my disposable e-cigs or I go to Hele Gas Station formerly Tesoro, to get Blu disposable e-cigs. One wonderful thing is that after a few months I wanted just e-cigs and don't like regular cigarettes too much now. Maybe your husband needs to make up his mind about it himself. Hopefully he'll want to go towards disposable e-cigs by himself. I hope he becomes a disposable e-cigger and enjoy it with better health too. By the way if buying from NEwhere.com please add in the special requests how many you bought, and to put it in one packing package, so they'll be no mistake for the amount you ordered and receive. God help both of you and cure your husband...amen. You're welcome in advance for prayers always. Take care.
     
    #41
  17. Krissttina Isobe

    Krissttina Isobe Very Well-Known Member
    Registered

    Joined:
    Aug 28, 2015
    Messages:
    1,401
    Likes Received:
    1,450
    I just came across a post that may help you and your husband for the post is from a gent, so it would be like man to man thing about e-cigs.

    The Switch From Smoking To Vaping.
    Discussion in 'Health & Wellness' started by Jeff Tracy, Sep 6, 2017.


    Good luck!
     
    #42

Share This Page