The Battle For M S

Discussion in 'Health & Wellness' started by Craig Wilson, Oct 11, 2019.

  1. Craig Wilson

    Craig Wilson Veteran Member
    Registered

    Joined:
    May 7, 2019
    Messages:
    6,545
    Likes Received:
    6,490
    Scientists from the US last year announced they had found a gene that increases the risk of developing the disease by 30 percent.

    This and a world-first trial conducted by Australian researchers using immunotherapy which produced promising results in 60 per cent of patients, some whose MS was previously untreatable.. are being seen as the most significant genetic breakthru in MS research in three decades.

    Multiple sclerosis (MS) is the most widespread disabling neurological condition of young adults around the world. You can develop MS at any age, but most people receive diagnoses between the ages of 20 and 50.

    Worldwide, the MS toll may run as high as 2.5 million people, according to the National Multiple Sclerosis Society.. 400,000 of those are Americans with approximately 200 new cases diagnosed every week.

    The symptoms of MS are many and varied, as the disease attacks different parts of the nervous system. One patient may have trouble walking, while another is wheelchair-bound. One person may experience terrible fatigue, while another might struggle with blurred or double vision. Still another might have slurred speech, tremors, stiffness and bladder problems, according to the National Multiple Sclerosis Society.

    Scientists from the US last year announced they had found a gene that increases the risk of developing the disease by 30 percent.

    This and a world-first trial conducted by Australian researchers using immunotherapy which produced promising results in 60 per cent of patients, some whose MS was previously untreatable.. are being seen as the most significant genetic breakthru in MS research in three decades.

    "After more than 30 years of finding nothing finally we are winning the battle against MS," said Dr. Jennie Q. Lou, professor of public health and internal medicine at Nova Southeastern University in Fort Lauderdale, Fla.
     
    #1
  2. Holly Saunders

    Holly Saunders Supreme Member
    Registered

    Joined:
    Nov 16, 2015
    Messages:
    51,949
    Likes Received:
    17,919
    My elder brother has MS, and my M-I-L died from it.... :(
     
    #2
    Craig Wilson likes this.
  3. Micki Pembroke

    Micki Pembroke Veteran Member
    Registered

    Joined:
    Jul 30, 2019
    Messages:
    1,280
    Likes Received:
    2,610
    @Holly Saunders So sorry Holly. Must have been so hard.:(.
     
    #3
  4. Holly Saunders

    Holly Saunders Supreme Member
    Registered

    Joined:
    Nov 16, 2015
    Messages:
    51,949
    Likes Received:
    17,919
    Thanks Micki, yes indeed it's not been easy, I have to admit!!
     
    #4
  5. Micki Pembroke

    Micki Pembroke Veteran Member
    Registered

    Joined:
    Jul 30, 2019
    Messages:
    1,280
    Likes Received:
    2,610
    @Holly Saunders I have never lost anyone to those kind of horrible heath burdens, hopefully will never. You must be strong.
     
    #5
    Holly Saunders likes this.
  6. Patsy Faye

    Patsy Faye Supreme Member
    Registered

    Joined:
    Nov 21, 2015
    Messages:
    13,568
    Likes Received:
    16,301
    Its such good news Craig - genetic scrutiny is the way to go for a multitude of conditions
    Great post !
     
    #6
    Nancy Hart and Micki Pembroke like this.
  7. Holly Saunders

    Holly Saunders Supreme Member
    Registered

    Joined:
    Nov 16, 2015
    Messages:
    51,949
    Likes Received:
    17,919
    This has been said of me many times, Micki... I don't feel strong tho' but I've come through many adversities which must have made me that way!! Trouble is it's ultimately affected my health unfortunately!
     
    #7
    Micki Pembroke likes this.
  8. Craig Wilson

    Craig Wilson Veteran Member
    Registered

    Joined:
    May 7, 2019
    Messages:
    6,545
    Likes Received:
    6,490
    Many thanks Patsy.. apologies for duplicating two sentences. My submitted post showed they were gone.
     
    #8
  9. Tony Page

    Tony Page Veteran Member
    Registered

    Joined:
    Jan 25, 2021
    Messages:
    3,526
    Likes Received:
    8,382
    Pit
    When it rains it pours I apologize upfront for the downers I've been bringing to SOC.
    A little background information my son-in-law Tom that is married to my middle daughter Michele, was diagnosed with MS about 20 years ago. He has been taking a drug that kept the MS under control for many years. This drug could have deadly side effects so he was tested every so often to make sure it was still safe to take. His doctor retired and much younger doctor took over for him. She misread the lab report about 6 years ago and took him off the medication that was working for him. He declined like a rocket every month you can see him getting worse. He reached a point where he lost control his bodily functions just the other day he fell no one was home and laid on the floor until someone got home from work or school to pick him up.
    This morning my daughter informed us he is in the hospital with covid, he has double pneumonia.
    He is a fighter and we're praying for his recovery.
    Peak
    Waiting
     
    #9
  10. Yvonne Smith

    Yvonne Smith Senior Staff
    Staff Member Senior Staff Greeter Task Force Registered

    Joined:
    Jan 21, 2015
    Messages:
    14,881
    Likes Received:
    27,872
    Saying prayers for you and your family, @Tony Page . You have had way more than your share of family health issues, this past year or so. Hopefully, being in the hospital will give the doctors a chance to re-assess the MS and get him back on a medication that helps.

    Have the doctors suggested any kind of diet that might help him recover, Tony ? When I started the Starch Solution diet from Dr. Mcdougall, I was reading that it can also help with immune diseases, like lupus and MS.
    My daughter has had MS for close to 20 years (or maybe more, it was several years before they diagnosed it correctly and started treating her), and she was getting some sort of infusion treatments. She is also health conscious, but does not follow any special protocol, as far as I know.

    https://multiplesclerosisnewstoday.com/living-with-ms/ms-diet-nutrition/the-mcdougall-diet/

    https://www.drmcdougall.com/articles/common-health-problems/multiple-sclerosis/
     
    #10
    Ken Anderson and Tony Page like this.
  11. Tony Page

    Tony Page Veteran Member
    Registered

    Joined:
    Jan 25, 2021
    Messages:
    3,526
    Likes Received:
    8,382
    Thank you and thank you for the information
     
    #11
    Yvonne Smith likes this.
  12. Beth Gallagher

    Beth Gallagher Supreme Member
    Registered

    Joined:
    Jan 11, 2018
    Messages:
    20,310
    Likes Received:
    42,307
    @Tony Page -- my goodness, I'm so sorry to hear about your son-in-law, Tony. Sending positive thoughts and best wishes to your family.
     
    #12
    Tony Page likes this.
  13. Faye Fox

    Faye Fox Veteran Member
    Registered

    Joined:
    Aug 31, 2019
    Messages:
    6,086
    Likes Received:
    12,253
    Sorry to hear @Tony Page that double phenomena has set in to add to your SILs problems. Sorry to hear of any with a MS dx.

    MS can be hard to diagnose. I was thought to have MS for over two years and it was overturned when a 3rd MRI showed no further white matter PROGRESSION on brain nerves. Two years on antiviral therapy stopped any progression and changed my DX to atypical MS from viral causes simply meaning MS-like symptoms from viral causes are now stabilized. The thing is my brain looked like an 80-year-old at age 55 and hasn't progressed so in 9 years my MRI will be age apprioate.
     
    #13
    Mary Stetler and Tony Page like this.
  14. Tony Page

    Tony Page Veteran Member
    Registered

    Joined:
    Jan 25, 2021
    Messages:
    3,526
    Likes Received:
    8,382
    Faye
    I'm so sorry to hear about your medical condition. Reading your chat room writings I could never tell you had an 80 old brain. You put it to good use your music, your technical interest in Electronics, your cowgirl knowledge of horses, I'm sure I'm missing a few other things that I can't think of.
    MS is just a terrible disease, I lost a close friend to it a few years back so sad, it's a slow death.
     
    #14
    Faye Fox likes this.
  15. Tony Page

    Tony Page Veteran Member
    Registered

    Joined:
    Jan 25, 2021
    Messages:
    3,526
    Likes Received:
    8,382
    We just got an update on my son-in-law's condition, I didn't realize earlier that he was still in the ER in an isolation area, they just moved him to a room. My daughter says he's very comfortable in the room, he said something to eat, the anti-viral drug which starts with an R I can't remember its name seems to be working he's actually feeling better already, we're starting to feel a little more optimistic about his outcome.
     
    #15

Share This Page